FGFR2

Chr 10AD

fibroblast growth factor receptor 2

Also known as: BBDS, BEK, BFR-1, CD332, CEK3, CFD1, ECT1, JWS

The protein encoded by this gene is a member of the fibroblast growth factor receptor family, where amino acid sequence is highly conserved between members and throughout evolution. FGFR family members differ from one another in their ligand affinities and tissue distribution. A full-length representative protein consists of an extracellular region, composed of three immunoglobulin-like domains, a single hydrophobic membrane-spanning segment and a cytoplasmic tyrosine kinase domain. The extracellular portion of the protein interacts with fibroblast growth factors, setting in motion a cascade of downstream signals, ultimately influencing mitogenesis and differentiation. This particular family member is a high-affinity receptor for acidic, basic and/or keratinocyte growth factor, depending on the isoform. Mutations in this gene are associated with Crouzon syndrome, Pfeiffer syndrome, Craniosynostosis, Apert syndrome, Jackson-Weiss syndrome, Beare-Stevenson cutis gyrata syndrome, Saethre-Chotzen syndrome, and syndromic craniosynostosis. Multiple alternatively spliced transcript variants encoding different isoforms have been noted for this gene. [provided by RefSeq, Jan 2009]

GeneReviewsOMIMResearchGenerating clinical summary…
GOFmechanismADLOEUF 0.2714 OMIM phenotypes
Clinical SummaryFGFR2
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Gene-Disease Validity (ClinGen)
Apert syndrome · ADDefinitive

Definitive — sufficient evidence for diagnostic panels

6 total gene-disease associations curated

Population Constraint (gnomAD)
Highly constrained gene — heterozygous loss-of-function variants are very rare in the population (pLI 1.00). One damaged copy is likely sufficient to cause disease.
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ClinVar Variants
132 unique Pathogenic / Likely Pathogenic· 386 VUS of 954 total submissions
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Clinical Trials
12 active or recruiting trials — potential therapeutic options may be available
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GeneReview available — FGFR2
Authoritative clinical overview · Recommended first read
Open GeneReview ↗

Population Genetics & Constraint

gnomAD v4 — loss-of-function & missense intolerance

LoF intolerant — likely haploinsufficient
LoF Constraint?
0.27LOEUF
pLI 0.997
Z-score 5.29
OE 0.14 (0.070.27)
Highly constrained

Highly LoF-intolerant (top ~10% of genes)

Missense Constraint?
2.40Z-score
OE missense 0.69 (0.630.75)
323 obs / 469.5 exp
Mild constraint

Moderately missense-constrained (top ~2.5%)

Observed / Expected Ratios?
LoF OE?0.14 (0.070.27)
00.351.4
Missense OE?0.69 (0.630.75)
00.61.4
Synonymous OE?1.11
01.21.6
LoF obs/exp: 6 / 43.8Missense obs/exp: 323 / 469.5Syn Z: -1.17
Curated Mechanism (G2P)Gene2Phenotype (DDG2P) ↗
definitiveFGFR2-related lacrimo-auriculo-dento-digital syndrome (LADD)GOFAD
definitiveFGFR2-related Beare-Stevenson cutis gyrata syndromeGOFAD
definitiveFGFR2-related Jackson-Weiss syndromeGOFAD
strongFGFR2-related Antley-Bixler syndromeOTHERAD
definitiveFGFR2-related Crouzon syndromeGOFAD
definitiveFGFR2-related Apert SyndromeGOFAD
definitiveFGFR2-related Pfeiffer syndromeGOFAD

This gene — mechanism propensity

DN
0.5476th %ile
GOF
0.7029th %ile
LOF
0.59top 25%

This gene has evidence for multiple mechanisms of pathogenicity (loss-of-function and gain-of-function). The Badonyi & Marsh model scores gain-of-function highest among its predictions, but genomic evidence (constraint, ClinVar variant spectrum, and literature) most strongly supports loss-of-function (haploinsufficiency). Different variants in this gene may act through different mechanisms — interpret in context of the specific variant.

LOF1 literature citation · LOEUF 0.27
GOFprediction above median · 1 literature citation · 85% of P/LP are missense

Note: In-silico variant effect predictors (SIFT, PolyPhen, REVEL, CADD) may underestimate pathogenicity of missense variants in genes with GOF or DN mechanisms. Consider functional evidence and clinical context.

Literature Evidence

GOFGain-of-function missense mutations in FGF receptor 2 (FGFR2) are responsible for a variety of craniosynostosis syndromes including Apert syndrome (AS), Pfeiffer syndrome (PS) and Crouzon syndrome (CS).1
LOFPfeiffer syndrome caused by haploinsufficient mutation of FGFR2.2

Predictions from Badonyi M, Marsh JA. PLoS ONE. 2024;19(8):e0307312. Mechanism ranking also informed by gnomAD constraint, ClinVar, and ClinGen data.

ClinVar Variant Classifications

954 submitted variants in ClinVar

Classification Summary

Pathogenic71
Likely Pathogenic61
VUS386
Likely Benign285
Benign75
Conflicting53
71
Pathogenic
61
Likely Pathogenic
386
VUS
285
Likely Benign
75
Benign
53
Conflicting

Curated Variants Distribution

Classified variants from ClinVar · 5 ACMG categories

ClassificationLoFMissense + InframeNon-codingSynonymousTotal
Pathogenic
8
57
4
2
71
Likely Pathogenic
5
55
1
0
61
VUS
12
308
49
17
386
Likely Benign
0
11
138
136
285
Benign
0
1
70
4
75
Conflicting
53
Total25432262159931

LoF = frameshift, stop gained/lost, canonical splice · Counts from ClinVar esearch · Updated hourly

View in ClinVar →

48 pathogenic / likely-pathogenic (of 55) ClinVar copy-number / structural variants overlap FGFR2 — these span large chromosomal regions, not the gene specifically, and are excluded from the counts above. Explore in CNV tools →

Protein Context — Lollipop Plot

FGFR2 · protein map & ClinVar variants

Showing all ClinVar variants across the protein. Search a specific variant to highlight its position.

Clinical Trials

Active and recruiting trials from ClinicalTrials.gov

CraniosynostosesCrouzon SyndromeSaethre Chotzen Syndrome

ASO Treatment for Syndromic Craniosynostoses

NOT YET RECRUITING
NCT07535372Fondazione Policlinico Universitario Agostino Gemelli IRCCSStarted 2026-04-20
Design of patient specific ASO
Rare Malignant Neoplasm

Marker Assisted Selective ThErapy in Rare Cancers: Knowledge Database Establishing registrY Asia

RECRUITING
NCT05217407National Cancer Center, JapanStarted 2021-11-30
Genomic sequence
HER2-Gastric/Gastroesophageal Junction CancerUrothelial CarcinomaNon-Small Cell Lung Cancer

A Phase 2 Clinical Study of ABSK061 and ABSK043

RECRUITING
NCT06632262Phase PHASE2Abbisko Therapeutics Co, LtdStarted 2024-11-13
ABSK061 + ABSK043ABSK061+ABSK043 in combination with CAPOX
Biliary Tract Cancer

A Post-marketing Observational Study of Tasfygo in Participants With Unresectable Biliary Tract Cancer With Fibroblast Growth Factor Receptor 2 (FGFR2) Fusion Gene Positivity Who Progressed After Chemotherapy

RECRUITING
NCT06793709Eisai Co., Ltd.Started 2025-07-10
No Intervention
Advanced Pancreatic CarcinomaMetastatic Pancreatic CarcinomaStage II Pancreatic Cancer AJCC v8

A Phase II Nationwide, Fully Decentralized, Telemedicine Study of Pemigatinib in Adult Patients With Advanced or Metastatic Pancreatic Cancer With FGFR Genetic Alterations

RECRUITING
NCT06906562Phase PHASE2Sameek RoychowdhuryStarted 2025-08-26
PemigatinibComputed Tomography (CT)Magnetic Resonance Imaging
Lymphoma, Non-HodgkinMultiple MyelomaAdvanced Solid Tumors

Canadian Profiling and Targeted Agent Utilization Trial (CAPTUR)

RECRUITING
NCT03297606Phase PHASE2Canadian Cancer Trials GroupStarted 2018-03-23
OlaparibDasatinibNivolumab plus Ipilimumab
Intrahepatic Cholangiocarcinoma (Icc)CholangiocarcinomaOther Solid Tumors, Adult

A Study of an FGFR2/3 Inhibitor (CGT4859) in Patients With Cholangiocarcinoma and Other Advanced Solid Tumors

ACTIVE NOT RECRUITING
NCT06777316Phase PHASE1, PHASE2Cogent Biosciences, Inc.Started 2025-01-22
CGT4859
Gastric and Cardia Adenocarcinomas

Biomoleculars Markers of Sensitivity to Pre- and Post-operative Chemotherapy of Gastric and Cardia Adenocarcinomas: a Pilot Study

RECRUITING
NCT02491840Phase NAUniversity Hospital, Strasbourg, FranceStarted 2016-05
Biopsy
Advanced CholangiocarcinomaFGFR2 FusionsGene Rearrangement

Study of Futibatinib in Patients With Advanced Cholangiocarcinoma With FGFR2 Fusion or Rearrangement

RECRUITING
NCT05727176Phase PHASE2Taiho Oncology, Inc.Started 2023-07-05
TAS-120
FGFR2 Gene Fusion/RearrangementOther Solid Tumors, Adult

A Study of Lirafugratinib in Non-CCA Solid Tumors With FGFR2 Fusion or Rearrangement

RECRUITING
NCT07359820Phase PHASE2Elevar TherapeuticsStarted 2026-06-04
Lirafugratinib
Advanced Malignant Solid NeoplasmAnn Arbor Stage III Non-Hodgkin LymphomaAnn Arbor Stage IV Non-Hodgkin Lymphoma

Targeted Therapy Directed by Genetic Testing in Treating Pediatric Patients With Relapsed or Refractory Advanced Solid Tumors, Non-Hodgkin Lymphomas, or Histiocytic Disorders (The Pediatric MATCH Screening Trial)

ACTIVE NOT RECRUITING
NCT03155620Phase PHASE2National Cancer Institute (NCI)Started 2017-07-31
Biopsy ProcedureBiospecimen CollectionBone Marrow Aspiration and Biopsy
Cholangiocarcinoma,Adult

Efficacy and Safety of 3D185 Monotherapy in Subjects With Previously Treated Locally Advanced or Metastatic Cholangiocarcinoma

NOT YET RECRUITING
NCT05039892Phase PHASE23D Medicines (Beijing) Co., Ltd.Started 2026-12
3D185